Information on research and statistics from the National Institute on Disability, Independent Living, and Rehabilitation Research.
A Rehabilitation Research and Training Center (RRTC) primarily funded by NIDILRR
The purpose of the Disability Statistics RRTC is to produce and disseminate statistical information on disability and the status of people with disabilities in American society and to establish and monitor indicators about how conditions are changing over time to meet their health, housing, economic and social needs. The center also maintains an Annual Disability Statistics Compendium .
The ISDS is an information sharing and networking agent in order to build a more systematic and cohesive federal effort. The ISDS's networking function identifies persons nationally and internationally to: participate on survey instrument development, review and analyses; serve on expert panels; and to recruit persons for job openings.
The National Spinal Cord Injury Database has been in existence since 1973 and captures data from SCI cases in the U.S. Since its inception, 24 federally funded Model SCI Care Systems have contributed data to the National SCI Database. Statistics are derived from this database or from collaborative studies conducted by the Model Systems.
The TBI Model Systems are funded through the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). These research and demonstration grants focus primarily on:
- developing and demonstrating a model system of care for persons with TBI, stressing continuity and comprehensiveness of care; and
- maintaining a standardized national database for innovative analyses of TBI treatment and outcomes.
The Burn Data Coordinating Center (BDCC) began collecting data in 1994 and is currently the largest burn database in the country. Pediatric burn data was added in 1998. The BMS database contains over 2,800 cases supporting clinical research and research on outcomes including employment, community integration, quality of life and comparing different care and rehabilitation strategies.
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